This is going to be long because I don't know how to condense it to get the best advice. What I ultimately need is just direction on where to go from here.
I've posted a little about this a few months ago but I'm making my own thread because we are really not sure how to proceed with it. On December 16 I got a call from my middle son's boss. He was letting me know that my son was being taken to the ER after having a seizure at work. If it matters, he is 26 and no previous history of seizures. When we arrived at the ER we found out that he had seized for a prolonged period of time requiring them to give him some kind of paralytic to stop the seizures and was on a ventilator to help him breathe. His CT scan showed some bleeding on the brain but they weren't terribly concerned with that. He also had some vertebral fractures both new and old. Initially the doctors thought he probably hit his head and started seizing. After speaking with his coworker he said that he walked into my son's office to let him know that he was heading home and he was sitting in his chair with a blank stare. He walked over to try to get his attention and my son started seizing. He was ventilated for 24 hours and then able to be woken up and breathe on his own. He spent another 3 days in the hospital. They did 2 EEGs in the hospital, both were normal with no seizure activity. His tox screen was not clean so after some additional follow up they figured that was the cause of the seizure and it was likely a one time thing.
Fast forward to last Wednesday. I got another call that he was transported to the ER again after he had an episode at work where was unresponsive and started sweating profusely. At the ER they said that this was another seizure, put him back on Kepra, and said to get a repeat EEG which he did today. He hasn't talked with the neurologist yet but he sees the result of the EEG in his patient portal and it is showing normal results. His tox screen this time was completely clean. He was told that the CT scan from last week was normal as well. I was out of town when this happened so all of my info is coming from my son and husband. I feel like we are back at square one trying to find out what caused this so that we can try to prevent it in the future.
I guess I am second guessing whether the second episode was a seizure as well as whether the first seizure was a response to something else. We have zero family history of any kind of seizure disorder but there are heart attacks and strokes all up and down the family tree. Is this something we should bring up to the neurologist when they call hopefully tomorrow? They have never asked previously. Are there questions we should be asking or information that we need to be giving in order to help get a diagnosis? And because I know someone is going to bring it up, he had covid before vaccines were available and had the J&J vaccine. So no need to discuss it at all.
I've posted a little about this a few months ago but I'm making my own thread because we are really not sure how to proceed with it. On December 16 I got a call from my middle son's boss. He was letting me know that my son was being taken to the ER after having a seizure at work. If it matters, he is 26 and no previous history of seizures. When we arrived at the ER we found out that he had seized for a prolonged period of time requiring them to give him some kind of paralytic to stop the seizures and was on a ventilator to help him breathe. His CT scan showed some bleeding on the brain but they weren't terribly concerned with that. He also had some vertebral fractures both new and old. Initially the doctors thought he probably hit his head and started seizing. After speaking with his coworker he said that he walked into my son's office to let him know that he was heading home and he was sitting in his chair with a blank stare. He walked over to try to get his attention and my son started seizing. He was ventilated for 24 hours and then able to be woken up and breathe on his own. He spent another 3 days in the hospital. They did 2 EEGs in the hospital, both were normal with no seizure activity. His tox screen was not clean so after some additional follow up they figured that was the cause of the seizure and it was likely a one time thing.
Fast forward to last Wednesday. I got another call that he was transported to the ER again after he had an episode at work where was unresponsive and started sweating profusely. At the ER they said that this was another seizure, put him back on Kepra, and said to get a repeat EEG which he did today. He hasn't talked with the neurologist yet but he sees the result of the EEG in his patient portal and it is showing normal results. His tox screen this time was completely clean. He was told that the CT scan from last week was normal as well. I was out of town when this happened so all of my info is coming from my son and husband. I feel like we are back at square one trying to find out what caused this so that we can try to prevent it in the future.
I guess I am second guessing whether the second episode was a seizure as well as whether the first seizure was a response to something else. We have zero family history of any kind of seizure disorder but there are heart attacks and strokes all up and down the family tree. Is this something we should bring up to the neurologist when they call hopefully tomorrow? They have never asked previously. Are there questions we should be asking or information that we need to be giving in order to help get a diagnosis? And because I know someone is going to bring it up, he had covid before vaccines were available and had the J&J vaccine. So no need to discuss it at all.
